Shelly's Story - part three
By the time we
arrived at the hospital, Mark met us and said that the helicopter had
just taken off for U of M. I remember that I kept saying “my poor baby,
oh God please be with Shelly”. Mark proceeded to tell us about what had
taken place that morning before we got to the hospital. Shelly was startled
when they woke her up and the nurses started changing I.V’s getting
her ready for the move to U of M in the helicopter. As the nurses wheeled
Shelly down to the helicopter pad outside of the hospital,
several nurses were standing with Mark. Mark was trying to keep calm and
proceeded to tell Shelly that “there are a lot of people that are praying
for you right now”. Shelly said, “Dad, let’s pray right now”. So she took
hold of the nurses and Mark’s hands and they all stood in a circle around
her gurney as Mark prayed for this dear child that God had given to us
to love.
Through God’s grace and
protection, we all drove down to U of M safely. We looked back later and
realized if God had ordained to have a new heart available even twelve
hours early, there was a U of M football game going on and we would not
have been able to get there in record time. When we arrived at U of M,
Mott’s Children’s Hospital, we were directed to the Pediatric Intense
Care Unit (PICU) where Shelly was being prepared for surgery.
We were able to go in
to see her, hug her and tell her that we loved her so much and how proud we
were of her to ride that big helicopter. We later found out that the crew
on the helicopter had told the staff at the hospital that Shelly’s flight
was one of the nicest flights they had with a ‘almost 4 year old’. They said
that Shelly sang “Jesus Loves Me” all the way down to the hospital. God’s
precious gift! Something that I always said to the doctor’s before they would
go into a surgical procedure was “now you take good care of our baby and we
are praying for you”. They would smile and say thank you. That day was no
different! We were told to wait in the PICU family waiting room and it could
be for many hours.
Another
answer to prayer was that Kimberly was able to get a flight home to be
with Shelly and us and was at the hospital when Shelly came out of recovery.
Even though Kimberly was away in college, she and Shelly had a special
sister bond. One day when Kimberly came home from college, Shelly was
sitting at the counter coloring and she looked at Kimberly and said “Hey
Kimberly, you are no longer Kimberly. You are now Lilly and I am Billy.”
And that’s how it was. If Mark or I would say to Shelly “where’s Lilly”
Shelly would say, “you mean Kimberly?” And then holler “hey Lilly, Mom
wants you”.
Because of Jason’s
new job schedule in South Carolina, he was not able to come to the hospital
but would call every night and check on Shelly and want to know of any
changes. An email that I sent to family and friends after Shelly’s surgery
read: “Shelly is Fine! It’s about 11:00 p.m. and we are heading to a room
to get some much needed sleep but I couldn’t go to sleep without writing
and telling you just what a awesome God we have! They took Shelly down
to surgery at 6:00 a.m. The new heart was to arrive at 8:00-8:30a.m.
But it didn’t arrive
until 10:30a.m. The surgeon came up to talk to us about 2:30 and said
that the new heart was in and started working right off really well. BUT
her lungs were very weak and she was bleeding. But they hoped to have
her closed up and ready to be brought up to the PICU in about 2 hours.
Well, about 3 hours later, they did bring Shelly up but there were many
nurses and doctors working on her because she was bleeding so badly and
they had already given her an extra 2 liters of blood. About 2 hours later
and another prayer meeting time with friends and family in the waiting
room, the nurses and a doctor came to us and said that they had to take
her back to the operating room to open her back up. Shelly was bleeding
so badly through her chest tubes they were afraid that the bleeding would
settle in her lungs making them weaker yet. They rushed Shelly down to
the O.R. and about 45 minutes later while we just finished another prayer
time with the Lord, the surgeon came in with a smile on his face saying
that they got the bleeder and they would be closing up the chest AGAIN!
Praise the Lord! We just were able to spend some time with her and WOW
her oxygen levels were 99% and her little feet and hands are so pink.
The doctors again said
how serious she was and how much danger she was in but now she is doing better
and for us to get some rest. We know that Shelly isn’t out of complete danger
but we feel we can rest a little better right now.” Two days later another
email was being sent out to say “pray for Shelly”. Because of the surgeries,
her diaphragm had collapsed and she again was in danger. It was decided that
the doctors had to do a procedure on her side to repair the diaphragm and
that surgical procedure went well. While in the intensive care waiting room
over the next week, we can now look back and realize God would use us then
and later to encourage other families. One particular family that we met in
the waiting room was waiting for the doctor’s report on their young son with
a head injury, who the day before had fallen out of a tree. Unfortunately
it was determined that the child was brain dead and was put on life support.
Talking
with some of the friends and relatives that came in for the boy, they had
asked why we were in the waiting room. We explained to them that our daughter
was in having a heart transplant and a chance for a new life and we were waiting
for the doctors to come out. We can’t help but think that when the doctors
came to that family and it was decided to turn off the machines and then they
talked about and consented to the donation of their son’s organs, that Shelly
had a big part of another child’s life. After almost 2 weeks in the hospital
we were able to bring Shelly home.
She was a whole new and
different little girl! She was running, jumping, looking for bugs, jumping
into leaf piles, and eating without throwing up. She also was not sleeping
and because of all of the medications, very cranky. Because of one of the
medications, she began to grow a lot of hair on her eyebrows, arms, and legs.
Although Shelly was biracial her skin color was always light before the transplant.
Now her skin was turning really dark. We had a new daughter home with us but
we loved her even more! Almost everyday during the next 3 ½ years after the
heart transplant was something new. Shelly had trouble with high blood pressures
so we would have to make a chart of blood pressures that we took through out
the day. There were several times when she had to switch to a new medication
and we dealt with the side affects of each new one. She was immune suppressed
so to try to keep her healthy, Mark and I decided to home school Shelly. It
was decided that Mark would be the principal and I would be the teacher.
It was a nice threat if
Shelly was giving me a hard time about wanting to do a lesson, to just say,
“do I have to call the principal?” We’d laugh and she’d get her work done.
We both enjoyed the one on one time of home schooling and we both learned
so much! I tried to make it as enjoyable as possible. Yet if Shelly had to
go into the hospital, I’d pack up all of her books and we’d be able to catch
up while lying in the hospital bed. Even though we home schooled, we were
involved with a group of other home school children and did field trip outings
with the group. Shelly and I would visit the local library every other week
and sometimes we’d wait for Mark to come home and it could be a “Dad and Shelly
time”. Of course we never left the house without some kind of hand disinfectant.
When we used a grocery cart or swing at the park or a 10-cent ride on a horse
at the store, we would wipe our hands really well with a disinfectant wipe.
Anything to try to keep the germs away to avoid an illness. We even took a
plane trip to South Carolina for Jason and Mo’s wedding. Shelly looked and
acted like a “normal healthy child”!
It was at this point,
about 3 years after our first attempt to try to adopt Shelly, that we decided
to try to pursue adoption again. So again we filled out all of the necessary
paper work and sent everything that was needed to the State of Michigan Department
of Social Services for approval. We waited and waited. But no one could find
out what happened to Shelly’s paper work or what the hold up was. Every week
I’d call Shelly caseworker and say “could you please call and see what the
hold up is?”. He would call back to report that “they are still working on
it”.
Shelly enjoyed life!
She would light up a room when she walked in. She was familiar with every
surgical procedure she had, what medication
she had to take at each time of the day. She would tell the nurse what
gauge needle to use when having to give blood for a test. (And also remind
the nurses and doctors that her Mom had a Latex allergy so don’t come
into the room if you have Latex gloves). One day while having a check
up with Dr. Hani, her pediatric cardiologist, he asked Shelly if he could
take a picture of Shelly’s new heart? Shelly looked at him with a puzzled
look on her face as if he had just asked her to jump off the roof. I then
said “Shelly, Dr. Hani, wants to do an echogram (ultrasound) of your heart
– is that OK? She looked at Dr. Hani as she jumped off the examination
table and said, “oh, OK lets go”.
Shelly loved to sing praises
to God and enjoyed it when our pastor asked her to sing a solo or a duet with
him on a Sunday morning. No one was a stranger or visitor to Shelly. She would
always introduce herself to visitors at church and would make sure if there
were new children that they knew which class they needed to go to during Sunday
school. She befriended a physically handicap gentleman that adults would sometimes
shy away from. She saw past all of David’s handicaps and every Sunday made
a point to go to him and say “Hi, David, how’s it going?”
Even one Sunday she introduced
herself to a young visiting pastor and informed him that our family was taking
him out to lunch after he preaches. What the pastor didn’t realize was that
Shelly’s older sister was a classmate of his that he hadn’t seen for several
years and they started dating and were married a year later. Shelly enjoyed
horseback riding, jumping on her trampoline, swinging on her swing in our
back yard while singing songs so loudly the neighbors could hear. Wintertime
she enjoyed snow sledding, gymnastics visiting the animals at the Animal Control,
going to piano lesson (but not wanting to practice!).
Summer time was camping
in our trailer, painting rocks while Mark and I would prepare the trailer
for camping, capturing a “wolf spider”, daddy long legs, and a dragon
fly, and swimming lessons. She loved to go shopping for clothes. She had
a favorite girl-clothing store at the Mall that we frequented and she
modeled during a model show a new Christmas outfit. Visiting and talking
with clients at Mark’s veterinary clinic during the day and bringing in
her stuffed animals to be treated was a routine. She would also visit
the pet shop with Mark and even took a liking to tarantulas. Shelly named
every doll and toy animal that she has. She also enjoyed all her American
Girl dolls (she has 10 dolls with the latest one being Marisol), a lot
of Barbie dolls, Bratz Dolls, Betty Spaghetti’s and a play horse figurine
that she named spot. Every doll and animal had their own place in her
room and she was so creative in her imagination when playing with each
of her “friends” whether they were pretend or human.
As
one of her home school field trips, one week we took Shelly to Chicago
to visit the American Girl Store where Shelly had a way of talking Mark
and I into buying another American Girl doll with her clothes and also
a couple of matching outfits for Shelly. We also had time to go to the
dinosaur museum to visit “Sue” the dinosaur and visit the Chicago area.
Shelly loved to pretend and tell stories! After church on Sunday mornings
we would come home and she would line up several of her American Girl
dolls and Barbie dolls in front of our refrigerator and open her Bible
and start preaching to her dolls saying something like “now the Bible
says we have to obey our parents for this is right. Now that means….”.
Even during home school time she would bring in a box full of dolls or
animals and in our “record” book, of what we did during each school day
I would have to list each and every name under the attendance category.
One day during our home
school Bible lesson, Shelly and we had been studying Heaven and how wonderful
it will be. There would be no more shots, IV’s, heart biopsies, heart catherizations,
night time bed rules, rainy days, doctor visits and exams, high blood pressures,
latex, and our list just continued. About 2 weeks later, Shelly’s blood pressures
kept rising, her tummy was hurting and becoming enlarged and she was vomiting
a lot. After several calls to U of M, Shelly was admitted into the hospital
near our home to have Dr. Hani and Dr. Debbie keep an eye on her. Shelly’s
condition worsened so we were sent to U of M by an ambulance. Of course Shelly
was thrilled because they even turned on the siren when they could.
Being Shelly, after the
paramedics got her all settled in the ambulance and they started driving (I
was able to be in the front seat with the driver), she said, “ok, are there
any questions you have for me?” She proceeded to tell them about her cat she
named Dub-Be-Dubs, her fish in the aquarium, her pet snail, and all about
her life as a kid. Several days after Shelly was admitted back to U of M,
it was decided by the doctors to do a procedure to try to slow down her heart
rate. The procedure itself went fine but when she was taken to recovery Shelly
arrested.
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